Sometimes good things fall apart, so better things can fall together

Well, after I posted my disappointing news on Wednesday, I get a call from UCSD on Thursday informing me that they just got done with a teleconference with the Pharmacyclics people.  If you remember, Pharmacyclics is the company whose trial I was on, and the one developing Ibrutinib.

Through some process I am not fully aware of, they have decided that the 180 people that were on  Ofatumumab (the side of the trial I was on) are now eligible to receive Ibrutinib.  There is no time frame given, but the guess is 6-8 weeks.  So all I have to do now is to remain relatively stable and healthy for the next month or two and I will hopefully get Ibrutinib.  I will get blood tests every two weeks to make sure I am staying stable.

When I got the call, I was still actively pursuing the Revlimid + Rituxan regimen and went so far as to confer with my prescription drug insurance company to find out what my cost would be.  I did find out that it would have been $2,800 for the first month, and then $300 per month after that.  If I do get the Ibrutinib as part of the trial it will be no cost to me for some time, so that is another reason to get the Ibrutinib.

 I will post an update when I actually get the pills in my hand, because by now, I know that things can change on a daily basis.

Terry