Well, I have decided to give a short update on how Round 1 went and what happened afterwards. The treatment itself was 4 days last week (Tuesday – Friday). It was just about what I experienced last time, 6-8 hours in a chair, losing my taste buds after the first day, but generally not feeling too bad. I had a 7:30am one morning, so we just decided to stay down there the night before to make it easier to get there. It turned out to be a pretty wise decision. We stayed at a Residence Inn and they wound up having a free barbeque dinner and a free breakfast, and since we used points for the room in the first place, it was a cheap stay.
The problems began once I came home. I knew I was not going to feel 100%, and expected that, but I guess I forgot how POORLY I actually felt. Felt pretty lousy Saturday and Sunday, then Monday I thought I might be turning the corner, but still felt poorly. Then Tuesday I felt much better most of the day, and Wednesday (today), I feel mostly normal. In looking back at the recovery time after the last treatment, it wound up getting shorter and shorter each treatment. So I am hoping that the next treatment will go a little better. I am thinking that because my White count was higher this time (50,000 to 155,000) there may have been more leukemic cells to get rid of and therefore I felt worse.
I have an appointment with Dr. Kipps next week, so I can discuss some of these things then. If past treatments are a guide, my WBC actually goes up initially after the first treatment, but then by the time the second round happens it has gone down.
All for now
Terry
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