Today we went down to La Jolla for my blood test and type and cross match. So I just donated 5 tubes of blood, got in the car and drove home. On the way home we stopped in Solana Beach and ate at Milton's Deli. Milton's is the company that makes the good whole grain breads. But I digress. After we got back on the road, I got a call from my case manager. She informed me that my hemoglobin had dropped, (from 9.6 to 9.3), but it was not enough to warrant giving me a transfusion. In conferring with Dr. Kipps, they seem to think that the prednisone is kicking in and the AIHA is beginning to stabilize. So, for right now, I am not in need of any additional treatment. I don't have to go back down on Friday for a transfusion, or next week for a Rituxan treatment. I will stay on the current dose of prednisone until my counts start rising, and then they will start tapering me off again. I will also go down to La Jolla next week for a bi-monthly infusion of IVIG therapy (which will also help control the AIHA).
They do want me to get another shot of Aranesp, which is the protein which induces the production of red blood cells. We are trying to get this scheduled for up here at my alternate doctor on Friday. Otherwise, I will have to drive back down to La Jolla and get the shot tomorrow or Saturday.
I still feel fine, and played 27 holes of golf yeserday, so I am not letting any of this keep me down.
Terry
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How can you play 27 holes of golf? I think that's illegal. And is a hole the same as a round? Perhaps you should add a link for "What is golf and why do people insist on hitting a ball, chasing it, only to hit it again." But I digress, I'm glad you found a good sandwich on your way home. Well, this latest post is good news. And I know that having such a brilliant and dedicated medical team provides you and everyone who loves you a foundation of confidence. I love you. Now go play golf.
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